The 2008 StartupNation Leading Moms in Business Competition

Celebrating America's most outstanding home-based businesses and the people behind them.

In Partnership with

Contestant Profile

The Project - The Children's Rare Disease Network

Location Laguna Woods, CA
Year Business launched 2008
Website www.theprojectcharity.org

Contestant's Case to Win

This is based on the number of votes received.

A rare disease by definition afflicts less than 200,000 people. This can make it difficult to find a diagnosis and treatment. It can also create substantial financial burdens for families. Charities and researchers seeking funding often find it difficult to garner the attention and resources they need because the diseases they focus on may affect so few people. The reality, though, is that there is nothing rare about rare diseases. While individually they affect few people, there are more than 7,000 rare diseases affecting over 25 million people - or one out of every 10 people - in the United States.

The Children's Rare Disease Network exists to connect these families affected by rare disease, providing a collaborative web community that will inform and communicate all aspects of rare disease affecting children. The Network will provide a home, resources, community, and connections so desired by these families and caregivers. The Network will also represent this large population and create greater public awareness about the prevalence of rare disease and it's affects on these families.

Visitor comments

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Nicole Boice is an amazing mom who was put on this earth to help...She didn't know how much of a gift...Read more
This entire initiative wouldn't be possible if it wasn't for all the mom's that have given time for this...Read more
Nicole Boice is the most selfless, incredibly kind and empathetic Woman/Mom I know!!!! She has spent...Read more