Several years ago I had the blood test and it came back negative. My doctor joked, "Not only do you not have celiac disease but you failed the test horribly." I don`t recall hearing before that I could be a "silent celiac." Hmmm. My mother had a lot of the classic signs when she was finally properly diagnosed several years ago. The new diet has helped her immensely. And, typical of her giving nature, she is quite involved with Celiac Disease Foundation [ celiac.org ]. If you send an email to the organization, she is the first one to see it and will likely respond. She frequently accepts phone calls from people in desperate need of guidance, arranges dinners at local restaurants that are GF friendly, participates in email discussion lists, etc. Not long ago I was in a health food store in Oregon and overheard a conversation between a clerk and a customer who was newly diagnosed with celiac disease. I gave the woman my mother`s phone number, knowing that she would be happy to help, even though my mother lives in California. Knowledge is, indeed, power.
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