Thanks for posting that Steve!
Just so everyone knows, I am one of those people that had been misdiagnosed for years. I did not have the typical celiac symptoms at all - in fact I always had an "iron stomach". I did, however, suffer from ailments that were caused by years of malnourishment (chronic anemia, infertility, weak bones, autoimmune issues and more). I probably would have been suffering much longer if my son hadn`t come down with the classic symptoms as a baby. I researched it and talked to his pediatrician and it turned out he had celiac. During my research, I realized that I probably had it too. I`m what is known as a "silent celiac". My blood test was negative, but many people who have it even test negative with a blood test. (Some people lack the thing that triggers the test.) The end-all-be-all with celiac is that if you feel better on a gluten free diet, then you know you have celiac, or at least gluten intolerance. My son and I noticed huge improvements even within 48 hours of the diet, and we`ve been gluten free for 2 1/2 years now. When my younger son was a baby, he didn`t react well to gluten either so he is also gluten free.
Many, many people have celiac, but many more are gluten intolerant. I have read that it is as much as 1 out of 7 in the US. Your risk goes up much further if you have a relative with celiac or gluten intolerance. If you have a problem with gluten, you are at risk for many diseases such as osteoporosis, cancer, thyroid disease, diabetes, and lupus to name a few. Autism is also linked with celiac. (I have autistic family members.) Once you go gluten free, your risk normalizes with the rest of the healthy population.
I hope this helps someone. You guys don`t know this but I actually host a celiac site for people in my area (NH). It`s www.nhceliac.com. I pay for it with my own money and it has really helped us all connect locally.
Thanks for listening!
We have suspected my daughter has Celiac`s now for the last year (she is just 2) but so far the tests are negative. We unfortunately had a horrible GI doctor who left us hanging without any suggestions. After a meeting with our regular peditrician today (who happens to have Celiac`s), she suggested we try to eat gluten free for a month to see if the symptoms improve. So we are starting up asap.
I actually had to have a wheat-free, dairy-free, soy-free diet while nursing due to her colic so we are familiar with the diet. I am suspecting that I might actually have it as well (since I can no longer tolerate the foods I used to prior to this elimination diet)
My poor baby is miserable so I will try anything! Chris, I noticed your dips can be used in food preparation so I will be visiting your site either tonight or tomorrow. If you have any good suggestions on what your kids like - please pass them on!
I am new to start up nation but I also have celiac. I have been on the gluten free diet since 1980. All four members of my family are on the gluten free and casein free diet. I had the disease as a child but went through years of being sick with multiple stomach issues before finally being diagnosed in 1980. Although my biopsy was inconclusive my response to the diet was so dramatic that my doctor at the time said to remain on it for life. I had genetic testing done a few years ago just to reinforce the original diagnosis and I do have the celiac gene. I have made celiac my personal "soapbox", as my husband would say, talking about it every chance I have. I feel that knowledge is very powerful and since so many celiacs are undiagnosed, more people need to be aware of the disease and its symptoms. I find it very interesting to see new research into the brain connection with celiac and gluten intolerance - it may be that some who suffer from ADD/ ADHD, depression and other types of similar issues may be helped by being on the gluten free diet.
It does take some adjusting to live gluten and casein free but better health in both the short term and long term make it well worth the effort.